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Resource Links
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Links for submission should be to other sites of value to parents of Trisomy 18 children. Please note, personal websites will not be linked from this page. If you would like to connect people with your personal website, please do so through your Profile, or through your Custom Signature.
There are 20 Links in our Database
Latest Listings
| Category: Information |
Trisomía 18  |
Last Update: 2007/9/7 9:38 |
Description:
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| Hits: 485 Rating: 0.00 (0 votes) |
| Category: Support Groups |
Rowan Tree Foundation  |
Last Update: 2007/4/13 21:51 |
Description:
For those greiving the loss of a child through miscarriage, stillbirth or early infant death, Rowan Tree offers a online community and a website rich in resources about grief to support healing from such a loss.
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| Hits: 544 Rating: 0.00 (0 votes) |
| Category: Information |
Now I Lay Me Down to Sleep  |
Last Update: 2006/5/18 9:23 |
Description:
A non-profit organization offering infant bereavement photography by professional photographers. Offering gentle and beautiful photography and videography services in a compassionate and sensitive manner is the heart of this organization. The soft, gentle heirloom photographs of these beautiful babies are an important part of the healing process. They allow families to honor and cherish their babies, and share the spirits of their lives.
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| Hits: 724 Rating: 10.00 (2 votes) |
| Category: Information |
SOFT  |
Last Update: 2005/4/13 15:42 |
Description:
(Support Organization for Trisomy 18, 13, and Related Disorders) – This organization provides professional medical literature and family support and contact opportunities for those facing a rare trisomy diagnosis. They produce a regular newsletter and organize an annual conference in the United States. Particularly if your trisomy child is still alive, this organization has drawn together a tremendous amount of resources for you.
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| Hits: 1264 Rating: 10.00 (2 votes) |
| Category: Information |
Disability is Natural  |
Last Update: 2004/3/2 12:31 |
Description:
A groundbreaking website about disabilities and how people view them. "I just love the woman who writes the articles here, Kathie Snow. She give some wonderful insights and they have a cool store, too." reports Holly, Morgan's Mom.
Common sense about how having a disability is a natural experience of the human condition. Revolutionary articles on new attitudes, strategies to influence positive change, inclusive education, employment, behavior, humor, and a wide variety of other disability-related subjects.
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| Hits: 1036 Rating: 0.00 (0 votes) |
| Category: Information |
Dr. Toys  |
Last Update: 2004/3/2 12:26 |
Description:
Another great site for toys of all kinds, but also for developing skills for children with developmental challenges.
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| Hits: 777 Rating: 0.00 (0 votes) |
| Category: Information |
Child's Medic Alert ID  |
Last Update: 2004/3/2 12:24 |
Description:
Child's ID A Resource for parents raising a child with on-going medical conditions for medical alert jewelry. "I love that they have shoe tags," reports Holly, our volunteer moderator on Caring for a Child Board. "Morgan couldn't wear a bracelet as he would eat it, so these little shoe tags work great. They also have a medical alert sticker for you car. Basically, it is a yellow sticker that you put in the window that says to call 911 and that there is medical info. in the vehicle regarding the occupant of the car seat. Then they include a medical form that you can fill out and have in your car." Sounds like something every parent should have!
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| Hits: 1111 Rating: 0.00 (0 votes) |
| Category: Information |
Dragon Fly Toys  |
Last Update: 2004/3/2 12:18 |
Description:
Dragon Fly ToysDragon Fly Toys is my favorite, says Morgan's mom, Holly, our volunteer moderator for Caring for A Child Board. "You can fill out a brief survey about your child and they will come up with the toys they think meets your childs individual needs." Beautiful site . . .
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| Hits: 870 Rating: 0.00 (0 votes) |
| Category: Information |
GB Kids  |
Last Update: 2004/3/2 12:15 |
Description:
GB Kids sets out to help parents find and purchase products for their children that are durable, functional, fun and cost effective. These products are selected on the basis that they are useful to both typical children and those with special needs from ages 0-12. Some products specifically designed for use by children with disabilities are usually cumbersome looking and call attention to the disabled child. At gbkids.com, we have selected only the best products that allow all children to fit comfortably into all situations at home, school and play.
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| Hits: 698 Rating: 0.00 (0 votes) |
| Category: Support Groups |
Chromosome Deletion Outreach, Inc.  |
Last Update: 2004/2/5 21:45 |
Description:
Founded in 1992, CDO is a non-profit organization providing information & support for Families and Professionals affected by Chromosome Deletions, Trisomies, Inversions, Translocations and Rings.
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| Hits: 1074 Rating: 10.00 (1 vote) |
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